Tuesday, April 24, 2012

An update for your Tuesday

Hello, it's a gorgeous day here and the dog is staring at me because he thinks we're going for a walk. We are not. At least, not right now.

Our new next-door neighbors have moved in, I think, because this morning there were two cars in the driveway. They were supposed to move in last night but I never heard a peep nor saw any sign of a moving truck (not that I was spying out the window all evening or anything)(for reals, the only window in our house that faces their house is the one over the toilet in the master bath, so no). I'm guessing they are the quietest movers EVER and now I can never move again because we make a lot of noise and block up the entire street for days when we move, OMG. I am retroactively embarrassed for us now.

A few people have asked for an update on C's misophonia, and all I can really say is that he has good days and bad days. As I've said before, we are not opposed to medicating him for this if that seems the best way to go, but since no one in our area appears to have experience treating misophonia we wanted to try other things first. So far what we have tried are neurotherapy and a nutritional supplement that's a combination of l-theanine, GABA and 5-HTP. The supplement seems to help take the edge off of his anxiety, so that's good. He's been doing the neurotherapy for 6 months or so now and I do think it helps. It was helping a lot over the winter when he was doing it twice a week without fail -- he still wasn't able to be around us when we were eating/drinking, but he was able to hang out with us otherwise and have long (for him) face-to-face conversations without being triggered. But this spring has been crazy with his school schedule and his therapist's schedule and various things that have come up, not to mention the $200/week out of pocket that's not covered by insurance (although our healthcare FSA through P's employer FINALLY agreed to start reimbursing us a couple of weeks ago). So his therapy schedule has been a little more sporadic lately and unfortunately it shows.

We are beginning to suspect that C's misophonia falls under the same anxiety umbrella as his OCD and Tourette Syndrome. His OCD and Tourette's are mild, his misophonia is not, nor is the depression he's experiencing as a result. Frankly I do expect him to end up on anxiety/depression meds eventually, sooner rather than later, because I'm beginning to think the misophonia and OCD and Tourette's are just really severe, complicated symptoms of a larger underlying problem with his brain chemistry. Maybe we should quit focusing so much on the symptoms and try to get the underlying cause under control? Especially since they do have meds for that? I expect we'll be making some doctor appointments pretty soon.

In other news, I'm reading John Irving's A Prayer for Owen Meany for the first time ever (though I did see that somewhat horrible movie with Ashley Judd several years ago) and realizing that not only have I never read this book, I've never read ANY Irving whatsoever in all of my 45 years. I know. It's appalling, the gap in my literary education, especially when you consider I was in TAG English for 4 years in high school and minored in English in college. All we did was read, and then write about what we read! Eight years of that, and no Irving. I mean, really. (Also no Austen, no Bronte sisters, no London, no Stevenson, no Dostoyevski, no Tolstoy, no Eliot.)(What WERE we reading? A whole hell of a lot of Orwell, Vonnegut, Hemingway, Flaubert, Hawthorne, Crane, Melville, Ellison, Hesse, de Maupassant, Chaucer and Shakespeare. I know, right?)(Also, Flaubert and de Maupassant can both bite me, EXCEPT I THINK THEY MIGHT ENJOY THAT.)

So yeah. That's what's been happening around here.

12 comments:

  1. My daughter and I just had a cool conversation about misphonia. Today was her last day in her middle school internship for her Exceptional Ed major.
    That led to a discussion about a certain aid at the school who is 80 years old and has NO patience with her assigned student.
    I hope you can get to the underlying issues so C can get some relief from the anxiety.

    All we read in high school English was Hemingway, Shakespeare and Faulkner. Lots and lots of Faulkner.

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    1. To this day I haven't read a word of Faulkner. What. The heck, school?!

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  2. I was an English major and can't remember anything specific that we read. What's my problem? Anyway, I read plenty of Irving on my own.

    Hope you find the right mix to help your son. It must be really hard for him to hang out with other kids who are always eating! Oh, and I hope the new neighbors are nice. Fingers crossed!

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    1. Thanks, Cy! I can remember books I read and the middle names of boys I dated in high school, but can't remember what I ate for lunch yesterday or what I did with that very important piece of paper that was just in my hand five minutes ago. Oh middle age, you are HILARIOUS.

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  3. My daughter has misophonia and an OT recommended that we look at an new listening program that has been created to help - http://www.advancedbrain.com/spectrum. My daughter did try a different listening program a few years ago that did not help at all so we have not decided to try the new program yet but I thought that you might be interested. Thank you for writing about your experience as a family with misophonia.

    Sharon in Cedar Park, TX

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    1. Thanks so much, Sharon! I have bookmarked that website. C did a listening program years ago when an OT was treating him for sensory integration dysfunction. To be honest, I can't remember whether it helped much, but anything is worth a look at this point. Thanks again and best wishes to you and your daughter!

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  4. Had to giggle on the Flaubert comment!

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    1. I hated Madame Bovary with the fire of ten thousand suns, and I don't care who knows it!

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  5. We did read Austen, Bronte, London, Stevenson, Tolstoy, Eliot, Hawthorne, Melville, Chaucer and Shakespeare .... who are those other people you speak of? I might consider reading them in the next 45 years but no rush. I pray for your family and that things work out for your best. Do you wonder how much of this might also be a complication of just a boy becoming a man and the body chemistry really getting ramped up?

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    1. Thanks so much, Angie! I do think hormones are a BIG factor when it comes to his mood and how he deals with stress on any given day and that's why we've been walking a fine line between being proactive and just keeping an eye on things. Sometimes it's hard to know if a specific behavior is linked to these genetic issues he's had since birth (Aspergers, OCD, etc.) or to the fact that he's just a teenager. We don't want to medicate him for being sixteen, you know?

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  6. That movie with Ashley Judd was a TRAVESTY. I think John Irving made them change the name because it was so bad! The book is really good. I also love The World According to Garp and The Cider House Rules (and the movie of that one is MUCH better!).

    Yeah, most of the classical reading that I've done has been OUT of school. HAHA!

    Good luck to you and C. I hope you find medication or treatment that helps him.

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  7. Yes, de Maupassant totally wants to bite you. I recommend some Colette as an antidote.

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