Monday, August 20, 2012

Dog days


August has not been the most relaxing month ever here in Misophonia Land and full-day summer band did not go as well for C as expected. We made accommodations, we tweaked (and are still tweaking) meds, we made many many phone calls and sent many many emails and, you know, we all survived.

This is our last week of summer here; school starts one week from today. Band is only a few hours in the evening all this week, and in the meantime there are textbooks to pick up and lockers to be assigned and ID card photos to be taken and new therapists to meet. H has "fish camp", the crash course in all things high school that is presented to incoming freshmen, this week and she could not be more excited.

It's finally hit me that I will have TWO in high school this year; both kids at the same school again for the first time in two years. And they won't be at different schools EVER again until C graduates (please God) in two years and goes off to college (please oh please oh please) or stays here for college (that would be perfectly okay, too).

Anyhoo, this last official week of summer seems like as good a time as any to check in with those summer goals I set way back when, eh? Let's go!

1. Lose 17 pounds. I've lost 14. Not bad, eh? I was hoping to lose the 17 by my birthday, which is one month from today. Not sure I'll get there at the rate I've been going, particularly this month with all the stress-snacking and stress-cocktail-drinking, but we'll see. (Also one month from today: the 20 year anniversary of my engagement to P. Best birthday ever!)

2. Read more. Books I've read since the last time I updated you on the progress of my summer goals:  Judith Arnold's Goodbye to All That (light and fun; good beach read), Ben Rehder's Buck Fever (very fun; takes place near where I live; first in a series), Gillian Flynn's Gone Girl (LOVED; extremely dark and twisted and hilarious), Ben H. Winters's The Last Policeman (also LOVED and very much looking forward to more from this author), Carrie Regan's Rumors of Savages (super fun mindless romp; again, a good beach/airplane read). Right now I'm reading Valya Dudycz Lupescu's The Silence of Trees, which is gorgeous and heartbreaking and strangely cathartic, at least for me. It's not often that a work of fiction helps me sort out some of my own emotional junk, but this one has. Go figure.

3. Make peace with the whole shorts thing and quit worrying about how I look in them. Who wears short shorts? I WEAR SHORT SHORTS.


4. Quit buying coffee mugs already (also cute drinking glasses)(also BPA-free reusable plastic cups with lids and straws). I am happy to tell you I have not bought a single drinking vessel in the entire month of August. Er, so far.

5. Shop at the Farmer's Market every week. Um, no. They open at 8:30 a.m. in the summer! All the good stuff is gone by 8:35! How am I supposed to sleep late AND get a workout in? (I like to think I make up for not shopping the summer market all that often by shopping the winter market like crazy, when all they have is kale, kale and more kale and I more or less have the whole market to myself. Yeah. That's the ticket.)

6. Eradicate hornworms from the face of the Earth. I found one on the remains of my Patio tomato plant the other day. Yeesh. I really need to pull out those tomatoes; they've been done producing for ages now.

Alrighty! Time to knuckle down, get busy, and try not to freak out about school starting next week. Yeah. Good luck with that, me.

Thursday, August 2, 2012

Unwinding the despair spiral

Hello, I had hoped to tell you this week that our August is starting out AWESOME, that C is loving the heck out of summer band and doing great on the new meds and that everything is super hunky-dory and we are all excited about school starting later this month.

But you know what they say about hope. It's the thing with feathers that gets shot right out of the sky with a 12-gauge, or something. I'm pretty sure that's how that goes, yes? I never was a big Dickinson fan. (If you giggled when you read that last sentence, you are totally in my tribe.)

Somehow summer band has kicked C's misophonia into high gear. I've spoken with his doctor and we're going to tweak his meds to see if they are part of the problem. We've also spoken with the band director and will be putting some accommodations in place. We will deal with this. We will, we will. And I will step away from googling "distance learning for high school credit", "homeschool marching band", "distance learning for college degree", "legitimate work at home opportunities" and "house for sale with garage apartment". There, I have totally set myself up for ALL THE SPAM COMMENTS IN THE WORLD.

But hey, let's not talk about all that. Nor about the dream I keep having where thousands of tiny objects are spilling out of containers and I have to sort and count them all and put them back where they belong, nor that dream I had about the tornadoes, nor the fact that C and I arrived home from an aborted attempt to get through summer band this afternoon to discover that the dog had been Very Ill Indeed in our absence. All over my favorite rug. Yeah.

Let's talk about some things that are good. Okay? Can we do that? I'm going to. I think maybe I need to.

Here are some things I am enjoying these days, in no particular order:
  1. Avocados. I seriously cannot get enough of them right now.
  2. Level 2 of Jillian Michaels's 6 Week Six-Pack DVD. Holy cheezits, that is the hardest workout I have ever done. I freaking love it.
  3. La Croix flavored sparkling water. I have only just discovered this product (much like Columbus discovered America) and I am hooked. No calories, no sweeteners of any kind, no caffeine, but less boring than plain water.
  4. The Last Policeman by Ben H. Winters. A large asteroid is six months away from colliding with the earth, world economies and infrastructure are collapsing, people are killing themselves left and right, but police detective Henry Palace is just trying to do his job. Loved this book; it was quirky and weird and actually kind of sweet.
  5. Clothes shopping. I have not only gone down 2 pant sizes (well, 2.5 now, which is awkward), I've gone down a shirt size as well. I no longer hate trying on clothes, which is good, because I no longer can buy clothes without trying them on.
  6. Breaking Bad. It's back, and I am so happy. Except this is the last season, which makes me sad. But this is the happy list, so I'll just say that if they were to spin off a series of just Jesse and Mike hanging out in cars being badass, I would totally watch and enjoy that.
  7. Popcorn. The old-fashioned kind, popped in coconut oil on the stovetop and sprinkled with a bit of seasoned salt. I'm getting pretty much all my carbs in popcorn form these days.
  8. Big Bang Theory. I am very late to this party and I know everyone else is kind of over it, but somehow this show has become my comfort TV viewing.
  9. "Why Am I The One" by Fun. It's not a particularly happy song, but it makes me happy. Go figure.
  10. The sun is moving south. I can see it happening. This means fall is coming and my reverse seasonal affective disorder is GOING AWAY. Real soon now. I just know it.
Well, I've had so many interruptions that it's taken me about 5 hours to write this, so hey! I think it's time to publish. Talk to you later.

Thursday, July 26, 2012

School starts in 4.5 weeks











(I swear, 50% of my Instagram photos feature me holding something, 25% are foods I'm not holding, 15% are photos of my dog, and 10% are random things including but not limited to clouds and sunsets.)

I think I dreamed earlier this week that I'd updated my blog and told you all about C getting his wisdom teeth out on Monday, how he fainted and had a hypertonic seizure when they put in his IV and how it took him nearly two hours to recover enough that we could bring him home and how he couldn't keep anything down all day long until the doctor phoned in some anti-nausea meds (which caused him to throw up AGAIN before they finally kicked in and started working).

But I guess that didn't happen, the updating part. The rest of it did, but C is fine now, so maybe my brain wrote it off as a nightmare and decided it should stay in my subconscious with all the other Scary Moments In Parenting. Which is just fine with me. Drinking away the trauma has worked great for most of my adult life, why stop now? Heh.

Our summer has been all 1's and 10's with nothing in-between. Either we are crazy super busy or completely, utterly in relaxation mode. It's been good, mostly. I'm hoping we can work in an actual vacation of some sort, a few days at the beach maybe, next year since this is our second summer without anything like that. I don't want to complain or anything, and I'm not even particularly a beach person since I regard large bodies of water as basically giant fish toilets, but every now and then I feel compelled to make a pilgrimage to the Gulf of Mexico. Just to make sure it's still there, and that one can still drink slushy rum drinks and eat fried coconut shrimp with one's toes in the sand.

I think we're all looking forward to the routine of school again. Not long to wait now. H and I went school clothes shopping today totally on the spur of the moment and got her a ton of cute stuff while actually staying within our budget, which almost never happens! She is super excited about starting high school next month. C starts summer band on Monday and that is effectively the end of his summer, which he doesn't seem to mind one bit. We've been holding steady on his dose of Trileptal while he's recovering from the whole wisdom tooth thing, but he should be at his target dose before school starts and we are super excited to see how he does with that.

Yep. It's all good.

Friday, July 20, 2012

Summer of storms






It rained here every day for more than a week. And by rain I'm talking lightning, thunder, high winds, unrelenting downpours, power outages and, on at least one occasion, hail.

I spent five terrifying minutes trapped in my car in our driveway a couple of Mondays ago, watching our flag pole snap off and go flying, a large branch crack in half in the tree closest to my car, and quarter-sized hail pound against my east-facing passenger side window at more than 60 miles per hour. As our squatty, thick-trunked live oak trees whipped back and forth like Willow Smith's hair while horizontal bands of rain twisted and cavorted off to the west in the wake made by my car, I remember thinking to myself, "Is this a tornado? Am I in a tornado right now?" I thought I was gonna die, y'all.

But I didn't, and now we're back to sun and humidity and the hills are alive with the sounds of chain saws and wood chippers. The narrow streets of my suburban neighborhood are clogged with roofing and fence repair trucks, and I think we're all realizing that compared to the storms (and resulting power outages) that have been hammering much of the rest of the country this summer, we got off pretty easy. But still: yikes. No more of that, please.

Other stuff going on with us right now:
  • Tonight is the opening night of H's play at our local community theater! We saw a preview on Wednesday and it was fabulous and she was wonderful. I am so excited for/proud of her.
  • Fingers crossed, but the Trileptal seems to be working for C! It doesn't keep his misophonia from being triggered, but it does seem to dampen his reaction to his triggers. We're still nowhere close to his target dose so this is very encouraging. I'll be sure to keep you all posted.
  • I'm less than 6 pounds from my goal weight. Booyah! I'm still working my way through a stack of Jillian Michaels fitness DVDs and I continue to freaking love them. Right now I'm alternating Ripped in 30 (I'm on Week 4) with 6 Week Six Pack (I'm about to start Level 2). They are so hard, but they only take 30 minutes a day and the results have been amazing.
Alrighty, then. C and I are off to buy him lots of soup and pudding and whatnot because he's getting his wisdom teeth out on Monday. The fun never ends around here, yo.

Friday, July 6, 2012

Summer 1978: A day in the life

I am 11 years old and my brother is 9. We live in an Ohio suburb made up of lower-middle income families where most parents work blue, pink or low-level white-collar jobs. When we roll out of bed in the very late morning, our mom is just returning home from the breakfast shift at a local restaurant. Dad works more conventional hours, so we won't see him until dinnertime.

Mom visits with us briefly before heading off to the bedroom for a long nap. My brother and I scarf down bowls of cereal and decide what we'll do on this hot and sticky day. The windows are thrown open and box fans whir in the doorways. It's cooler outside than in. We pull on shorts, t-shirts, sneakers and steal a pack of my mom's Merit menthols from the kitchen cupboard where she keeps them (right next to Dad's Benson & Hedges, which are nasty), along with a box of Ohio Blue Tip matches. The screen door bangs shut behind us as we run out into the front yard.

Past the driveway, our side yard slopes sharply down lilac-covered banks to a small creek. There's a huge concrete tube under the street that allows the creek to flow from the woods across the street into our backyard, where it joins with another creek that runs behind all the houses on our side of the street. We head down to the cement tube first, to see if any of our friends are already there. They aren't, but someone has written on the inside of the tube with a chunk of drywall. We write our names, mine in big bubble letters. We never walk the full length of the tube to the other side of the street, too freaked at the idea of getting caught in the middle if there's a flash flood, or if the mean kids from the circle street try to corner us.

We scramble up the opposite creek bank into our neighbor's yard, where there is a path leading back into the woods. We follow it across the creek in back, stepping carefully on mossy wet stones, and climb slightly uphill until we get to our forts. These are natural structures formed by the funky growth patterns of wild grapevines. They've grown into hut-like configurations and there are three of them -- one for me, one for my brother, and one for my best friend who lives on the other side of us. My fort is best because it has a swing -- a vine that has looped down from the canopy overhead, then looped back up again. It's plenty strong enough to hold me, but if I try to actually swing on it the whole structure shakes like an earthquake, threatening to come down on me. So it's really more of a seat. My brother's fort has a seat, too -- a vine that has grown up from the ground and then humped back over again to form an upside-down U. My friend has the crappy fort, because she lets us push her around like that.

We decide not to smoke the cigarettes and instead hide them and the matches in my fort under some leaves. Then we walk back down to the creek and follow it until it the woods begin to thin out. That means we're approaching the farmhouse where old Shotgun Annie lives. No one's ever seen her, of course, but she has shot at some kids we know with a pellet gun while they've been fishing for tadpoles in her pond. Word is she shoots salt pellets -- nasty. We spend some time goofing around in the creek, daring each other to walk out into the open so the old lady can get a shot at us. Then we walk back up the creek until we reach our backyard.

We're bored, but we don't want to go inside. Instead, we walk up the street to see if any of our friends are out. No one is, so we keep walking until we get to the sidewalk that leads to the neighborhood elementary school. I went to this school for third and fourth grade, but that was when we lived in another neighborhood and I had to ride the bus. My brother goes there now and gets to walk. He'll be starting 4th grade in the fall, and I'll be starting 7th at the middle school.

We meander up the sidewalk until we get to the chain-link fence that surrounds whatever mysterious external machinery is connected with the school. Furnace? Generator? We don't know. It's hot there, so we keep walking until we get to the school. There are a couple of cars in the parking lot. We walk around the outside of the building, peeking in all the windows, marking out the classrooms we've occupied in the past. The classrooms look weird over the summer, like some kind of school museum with everything in suspended animation.

Eventually, we make our way over to the loading dock. This is where all the supplies for the school are dropped off and stored. Today, we're in luck! They've had a delivery of pop bottles for the machine in the teacher's lounge. The rolling metal gate is halfway open, and absolutely no one is around. I stand guard while my brother darts inside and grabs two bottles of Orange Crush. We hide them under our shirts as we run breathless back to the chained-in machinery, popping the bottle caps off with the aid of the wire fence. We suck down warm, overly sweet pop and feel not at all guilty, just a little scared that we'll get caught. The ground here is littered with bottlecaps. We aren't the only thieves in the neighborhood, and all of our friends will be jealous that we scored today without them.

We walk back down the sidewalk toward home, tossing the empty bottles into the woods along the path, where they clink against other long-ago discards. Halfway between the school and the street where we live, we turn off the sidewalk and climb over a metal guard rail onto the dead-end street below. We walk along the street furtively, counting houses, trying not to be seen, until we reach the house we're looking for.

It doesn't look like anyone's around to yell at us, so we dart through the backyard and into the cover of the trees. A couple more steps and we are at The Cliffs. It's a huge sinkhole, maybe 30 feet deep, big enough around to fit at least six or eight houses. There's no fence around it -- nothing whatsoever to keep people out. It's a favorite hangout because of the danger factor. If you're not brave enough to climb down the rocks to the bottom, you're a wimp. I once saw the toughest kid in school chicken out while halfway down and my friend's brother, who was two years younger, had to help him the rest of the way.

My brother and I walk along the rim, quietly, peering down to see if anyone's already there. It looks deserted so we make our way to the easiest path down, the one that takes a little longer but won't drop you straight onto a huge slab of rock if you misstep. He goes first because while younger and smaller, he is much tougher and braver than me. And I am faster than him -- if he falls, I can run and get help more quickly than he can if our situations are reversed.

We make it down to the bottom and run around giddily for a while, happy to have the whole place to ourselves. It's a little like the fantasy of being locked in the mall overnight. We OWN this place! Woo! After running around like idiots, we start searching out all the hidden places where we know people like to stash stuff. We find an old harmonica, a bunch of bottlecaps, a lighter that's out of fluid, some stained and torn Wacky Pack trading cards. Finally we get hungry and climb back out, running along the dead-end street to the guard rail, hauling ourselves back up onto the sidewalk and then walking down our own street toward home.

Mom is awake, smoking a cigarette and talking on the phone to Grandma. The menthol smell makes me want one, and with a warm glow I remember the pack I have stashed in my fort. If she notices it missing, she doesn't say anything. She fixes us a couple of bologna sandwiches and some chips and Kool-Aid, and we're off again.

By now my friend next door is home, so she tags along with us. She's jealous that we scored pop at the school and wants to see if there's any more. We are dubious as to her ability to come along without all of us getting caught, but work out a plan whereby she will wait at the fence, I'll stand guard and my brother will grab the bottles.

It's so hot that the tar in the pavement under our feet has formed little bubbles. I love the sound they make when I stomp on them so I zigzag all over the road to catch them all, even though I know my mom will have a fit if I track tar into the house.

By the time we reach the school again we're dripping with sweat. To our dismay, the gate to the loading dock has been closed and locked. All the cars are gone from the parking lot. We walk over to the playground and drink from the outdoor drinking fountain as a last resort. The water is warm and metallic and slightly orange in appearance so we sip only as much as we think we'll need to keep from dying of thirst. As we walk back down the sidewalk, the cool shade of the overhanging trees is very welcome. My brother and I dart off into the woods, dodging bees, to produce our discarded bottles as proof that yes we DID TOO get pop today. Look! There's still a little bit in the bottle! That would be dried by now if the bottles were old.

My friend wants to go to The Cliffs but we are hot and cranky and we know we'll have to help her climb out again, so we veto the idea. Back on the street, we decide to chance picking blackberries from the side yard of our across-the-street neighbors, who are universally hated because they have slightly more money and think they're better than the rest of us. We step off the road a couple of houses up the street, keeping to the edge of the woods so we won't be seen. It looks like no one is home, so we pick and scarf berries at a furious rate, taking even the slightly unripe ones so the hated neighbors won't get any at all. We move slightly deeper into the woods and pick mulberries, which are not at all ripe, and eat those until our stomachs hurt.

We cross the street, pass the sour cherry tree in our side yard (even WE won't eat THOSE cherries) and swing down into the tube under the road where the creek runs. We show my friend where we've written our names with drywall, and she adds hers as well. Then we head into the house for more Kool-Aid.

It's too hot to ride bikes, so we decide to walk back to the forts. It's cool and shady here, but the mosquitoes are out and about. We fish out the hidden pack of cigarettes and pass them around, lighting up and waving them about in hopes the smoke will keep the bugs away. We make a show of puffing at them but none of us inhale. The cigarettes make us lightheaded and goofy and we speak in whispers even though we're far from any houses. We stub out the butts in damp loam and cover the evidence with wet leaves, replacing the pack of menthols in its secret hiding place. The afternoon slowly turns to early evening and we nearly doze, me in my grapevine swing, my brother lying on a fallen log, my friend sitting cross-legged on the forest floor with her back against a tree.

We hear my friend's mom calling her for dinner and say our farewells. It's getting dusky and the bugs are out in force, so my brother and I make our way to our backyard. The dog is chained out under the black walnut tree so we play with him for a bit, and then our mom calls us in for supper.

Dad is home, wearing his "home" clothes but still smelling of air conditioning and machine oil and cigarettes and soap. Over dinner he asks us what we've been up to all day and we say, "nothing." After dinner we go out in the front yard, which we're not allowed to leave at this time of the evening, and see if anyone we know walks or rides their bike past our house. My friend comes outside again and gets permission to play in our front yard, and a couple of kids ride by on bikes and agree to join us. We play Kick The Can with a freshly emptied beer can my dad gives us and make tons of noise.

Finally it's dark and our moms call us inside. My brother and I take baths and watch a scant half-hour of TV in our pajamas before being sent off to bed. When we think our parents aren't paying attention, we sneak into each other's rooms and lie there in the dark, talking and acting out elaborate scenarios with our stuffed animals. When Dad tells us for the tenth time to STAY IN OUR OWN ROOMS, and threatens to shut our doors (the horror!) to keep us there, we crawl into our walk-in closets, which back up to one another, and quietly tap Morse code messages to each other through the wall.

Finally, one of us gives the signal that means "I'm tired -- good night" and we crawl into our beds, drifting off to the sounds of TV and crickets.

Monday, July 2, 2012

A misophonia update, or I medicated my kid today

(Actually last week, but who's counting? Oh, right. We are. Very carefully.)

We liked this doctor. We had seen him before, years ago, when another doctor told us H might be bipolar. This doctor didn't think she was, and we agreed, and then he dropped our insurance plan and that was that until he showed up on our insurance plan again years later (read: now), just when we were thinking that things with C might need to be kicked up a bit (or A LOT), treatment-wise.

So. We were sitting there in his office, C and P and I, only C wasn't hearing anything because he had his fingers in his ears, because P was talking. He can't risk hearing P talk, you see, because P talking is one of his triggers. H breathing is another one of his triggers, but H wasn't there. Normally C would have ear buds in, listening to music on his phone, but he had broken his phone two days before in a violent misophonia rage during his second-to-last day of summer school, when someone near him was chewing gum.

(That was a bad day, a day when the summer school principal, who is C's vice principal during the regular school year and one of his "safe" people at school who knows what's going on with him, tried to call all of the emergency numbers she had for C but wasn't able to reach any of us. Fortunately I got her message just moments later and was able to rescue C and set measures in place for the next day, his last day of summer school, and that was fraught with angst on all our parts but it worked out okay, only his phone still was broken.)

So P was talking and I was talking and C had his ears plugged tight but mostly the doctor was talking. He had consulted some colleagues on C's case, had thoroughly examined the diagnostic results and our family history and C's symptoms and C's own personal history, and we talked about electrical activity and temporal lobes and people with autism spectrum disorders having rage responses to stimuli, and then he told us there were three different classes of medications that have shown a lot of success in treating stuff like this.

Three. Different. Classes.

Oh, you guys. I wanted to cry. I didn't realize how much hope had completely deserted me until I felt it spark up again. I felt exactly the way I felt when we were told C had Asperger Syndrome: this is a real thing. It has a name. Doctors know about it. And they know how to treat it.

So the doctor told us about the three classes of medications. He told us the one he'd like to start with, and he told us the exact medicine within that class that he'd like to start with, and he told us why (high efficacy, low risk of side effects), and then he stepped back a bit. He told us that he felt confident recommending this course of action, this medication, but that it was entirely up to us. Did we want more diagnostics first? Did we want to wait a bit, do some research on our own on this particular medication?

P and I looked at each other, and we looked at our son, our boy who is almost a man, who was coiled tighter than any spring with his thumbs jammed into his ears, afraid to even look at us because then he'd just KNOW the sounds we were making and then he'd be off in a blind rage, screaming and throwing things and punching walls.

And we both had the same answer: a year ago? Yes. We would want more tests. We would want to research all this before making a decision.

But now? Today? After watching C self-destruct before our eyes for the past year-plus? After all the reasons you've told us why this makes sense for our individual kid? Write the prescription. We'll start it tonight.

I know that whenever a parent announces that she's decided to medicate her child, it opens up a giant can of worms. All sorts of well-meaning people feel qualified to sit in judgement, to lament how many kids are medicated these days, to rail against a society that makes it okay and even desirable to numb oneself out, to render oneself compliant and complacent. So I'm bracing for that, and while I do not at all feel the need to justify P's and my (and C's, because his input was essential) decision to anyone, I'm not sure I can adequately express the degree to which this was NOT a hasty decision. It was an easy decision to make in the end, but it's one we've been going back and forth on for literally YEARS. Since before the misophonia. Since before the Asperger and Tourette diagnoses. If anything, one might argue that we waited too long to medicate him, that he suffered while we dithered. That wouldn't be entirely accurate either, but I can see where someone who didn't know the intimate details of the past 16 years of our lives might think that.

In the end, for me, I had to reach a point where I knew beyond the shadow of a doubt that I was 100% making this decision FOR C. Not for me, to make him easier to parent or to keep my heart from breaking on a daily basis. Not for his teachers and school administrators, to make him easier to handle and less of a disruption in the classroom. Not for the people who don't know us and see him flip out and wonder what's "wrong" with him. For C, because he is miserable. Because he is emotionally broken. Because he has been through so much in his life, and maybe this ONE THING can be fixed, or made easier for HIM to deal with. When I asked him how he felt about trying meds -- and this was before we even knew there WERE meds that could actually help, but I asked him again after Thursday's appointment -- his exact words were, "I will try ANYTHING. Anything to make this stop."

And so that's where we are. The drug we're trying is Trileptal (generic name: oxcarbazepine), an anticonvulsant medication that's most often used to treat epilepsy. C does not have seizures as far as we know, but his EEG shows electrical activity in the brain that is consistent with a seizure type of disorder. (I have no idea whether that's true of all misophonics; it would be interesting to know.) He started on Thursday with a VERY low dose and we are very slowly stepping that up over a period of weeks until we get to the target dose for his body weight. So far he hasn't had any side effects; neither have we seen any improvement with his misophonia. We're continuing with both neurotherapy and with the neurotransmitter support supplement that C takes (a combination of l-theanine, GABA and 5-HTP) so that we can isolate any effect, positive or negative, of the Trileptal. And soon we'll likely be adding cognitive behavioral therapy back into the mix.

If this doesn't work, there are other things we can try, and that is so exciting to me. Because it wouldn't be exaggerating to say that these past few months, I have been in despair. I've been wondering if C will actually be able to make it through high school. I've been wondering if he'll end up dead or in jail. I've been crossing things off the mental list I had prepared for his future: Live in a dorm at college? Scratch that. He could never have a roommate. Live at home but go to regular college classes? Hmm, maybe not. College students chew gum and eat in class. Look what happened in summer school last week. Live at home and do some sort of distance learning program? Maybe, but can he actually get a degree that will help him make a living? For that matter: Have an actual job where he has to work with other people? Who knows?

Maybe, JUST MAYBE, someday soon I can erase those scratch marks and start adding things back to the list.

As for the biggies: Have a conversation with his father? Be in the same room with his sister? Take a car or plane trip with the rest of the family? Eat at the same table as us for holiday dinners or even just daily meals?

I'm not ready to think about those yet. But now I can hope.

Monday, June 25, 2012

Summer continues apace






I seriously can't believe June is almost over. What the heck, you guys? I don't even really remember June STARTING. Where was I when that was happening? Jeez.

I don't have much to tell you, really. We have been busy but we haven't been doing anything fun, if you know what I mean. C is finishing up his summer Communication Applications course this week and I find myself wondering how it would be if EVERY school semester was only 12 half-days long, with the kids only taking one class per semester. Judging by how things went this year, C would be getting WAY better grades if that were the case. Oh well.

H still is busy with community theater rehearsals. Opening night is in just a few weeks! Wow! I absolutely cannot wait to see my kid perform someplace other than a school cafeteria or rec center or library meeting room. Not that those aren't fun, too, just ... this is a real theater! People are paying like $20 to see this thing! I am just so excited for her. Acting is her absolute favorite thing in the world and I love to watch her play to an audience.

Now that it's officially summer, howsabout a quick check in with those summer goals, eh?

1. Lose 17 pounds. I am more than halfway there! Yes! No one is more surprised than me about that, trust me. Here are my weight-loss secrets: 1) smaller cocktails; 2) fewer junky snacks in front of the TV; 3) Jillian Michaels workout DVDs (specifically the 30 Day Shred, Ripped in 30 and Six Week 6-Pack DVDs). I know. I kind of want to punch MYSELF right now, but that's what has worked for me.

2. Read more. Eh, let's see ... I finished Travels With Charley and it was okay. I'm glad I read it, but it's not something I'd go back and re-read. Also finished Marion Nestle's Why Calories Count, which was fascinating. Brian Wansink's Mindless Eating was equally fascinating, but while the Nestle book was more food-sciencey, the Wansink was more human psychology-y. On the fiction side of things, I really enjoyed Karin Fossum's Don't Look Back, a Scandinavian mystery, and now I'm reading the next book in the series, He Who Fears the Wolf, which is very good but a bit confusing at the beginning. And continuing my non-fiction jag, I'm also reading and very much enjoying Terra Brockman's The Seasons on Henry's Farm. So yes, I guess I have been reading kind of a lot. Just not very quickly. As usual.

3. Make peace with the whole shorts thing. Er, well kind of. Thanks to the aforementioned Jillian Michaels DVDs, I am pretty much okay with the way my legs are SHAPED now. But the pasty white skin and plethora of spider veins still give me pause. (Although my mom told me the other day that one cluster of spider veins on the back of my right knee looks like a flower tattoo! So that's fun, right? MOMS ARE JUST THE BEST.)

4. Quit buying coffee mugs already (also cute drinking glasses). FAIL. My new drinkware obsession is BPA-free reusable plastic cups with lids and straws. Cold-brew iced coffee to go, baby! I had to get rid of some stuff to fit them into the cabinet. (But NOT any of my cute mugs or glasses, dammit.)

5. Hit the farmers market every week. Does every other week count? Sigh.

6. Kill all the hornworms in the world. Well, no. But the ones that ate my tomatoes back in the spring are dead, and that's good enough for me.

It's already in the 100s here but we're not going to talk about that. Let's talk about how lovely the morning and evening light looks streaming into my north-facing back windows, shall we? SO LOVELY. And how I can't get enough raspberries right now. And how limiting myself to 5 oz. of wine in the evening doesn't really do it for me, but I'm trying to adapt. And how there are officially LESS THAN TWO MONTHS until high school football/marching season, which will be the beginning of the end of my backwards seasonal affective disorder.

Yep. So. What's new with you?

Sunday, June 17, 2012

A thousand words (or less)

It happened yesterday evening. After Plan A (a microbrewery tour) for an early Father's Day celebration with my dad fell through, we switched to Plan B: beers and a movie (Prometheus, thumbs up) at the Alamo. Afterwards we met up with Mom for frozen yogurt and a sunset drive. We were headed north, just crossing the northern branch of the San Gabriel River, when my dad and I both happened to glance to our left, toward the setting sun. And then we saw it.

Six or eight school-aged children, all lined up across a little two-foot-high dam in the river about 100 feet off the road, backs toward us, silhouetted against a gorgeous pinky-orange sunset: they raised their arms in unison and then, a gleeful attitude apparent in every silhouetted limb, they jumped as one and disappeared from view.

We were too far away to hear the splash and the squeals, but was a beautiful sight, a perfect Augenblick of summer. It happened in a split second. It made me wish I'd been able to capture it on camera.

But I'm glad I got to see it. And I'm especially glad I got to see it with my dad.

Happy Father's Day to my awesome dad, my amazing husband, my little brother (whose children are a bit furrier than mine)(well, most of mine), my 92-year-old grandpa, all my uncles and boy cousins and brothers-in-law, and all the rest of you dads out there. May you have many special moments today with your kiddos, regardless of age or species.

Friday, June 8, 2012

'Twas brillig









Summer is humming right along here. It's hot, though. LORD is it hot. And busy. And hot.

Our week started off with a bang when, in the space of a single hour on Monday, H burned her right hand and wrist really badly with the aid of some boiling-hot soup and, when I tried to get her something cold to put on it, the kitchen tap just fell right off in my hand. FELL OFF. IN MY HAND. There's a plumber in my kitchen as we speak (not a euphemism) installing a whole new faucet assembly (also not a euphemism).

H is okay though she's probably going to have a whopper of a scar. The timing was unfortunate because she was a couple of hours away from a Very Important Audition at our local community theater. Thankfully it was an open audition taking place over the course of two days, so she rallied the day after and went in for a cold reading and now she will be uttering the opening lines of the play on opening night, huzzah! (It's an adaptation of Alice In Wonderland. She's part of the narrator chorus. They're doing "Jabberwocky" just at the beginning there, for some reason. THEATRE! We are not meant to understand. Only to appreciate. And clap politely. And not mention The Scottish Play EVER, no matter how badly knowing you can't makes you want to. Shhh.)

Anyhoodles, so she has rehearsals now 3 or 4 nights a week for pretty much the rest of our summer. C starts three weeks of summer school for "credit acceleration" on Monday (read: getting some required courses out of the way so he can free up room in his actual school-year schedule, which is packed sardine-tight because band is double-blocked, blah blah blah you don't care and I don't blame you) and then he has a few weeks off during which he'll likely have his wisdom teeth extracted (fun!) and then he has summer band until school starts, at which point ACTUAL band takes over (this all in addition to the usual 2x/week neurotherapy for his misophonia) and OMG, it's a good thing we didn't plan to travel at all this summer, eh? Right.

I don't mind so much being busy. I like routines. If I go without them for too long, I get weird(er).

I have been reading books: Marion Nestle's Why Calories Count, which was fascinating; Karin Fossum's Don't Look Back, which I enjoyed very much; and now I'm trying to finish Steinbeck's Travels With Charley which is (finally) picking up a bit now that our author and his standard poodle have reached the west coast of the U.S., although I'm not liking this one as much as I'd hoped and that makes me sad.

I'm not in much of a reading mood, to tell you the truth. Nor a watching mood since there's nothing on TV. Nor a music-listening mood, which is unusual for me. I suspect this is my Summer SAD rearing its ugly head, oh dear.

Thank goodness Breaking Bad is coming back soon. I could use a good meth lab explosion right about now.

Monday, June 4, 2012

Grilling for vegans

No meat here!

I was reading an online health and fitness forum recently where the topic had turned to grilling, and one of the participants said she did not grill because her family was vegan.

Oh, you guys. My uncured nitrate-free certified-humane grass-fed beef hot dog nearly fell out of my mouth.

Now you know we partake of the delicious meats here at our house, and you know why (my inability to metabolize non-heme iron, P's and H's allergies to most vegetable proteins)(see also: deliciousness), but I am here to tell you: I grill WAY more than just meat. WAY MORE. Just because you're not down for some elk or pastured chicken or wild-caught Alaskan salmon does not mean you should turn up your nose at the concept of grilling.

Here is some stuff I make OFTEN on the grill that's either 100% vegan already, or can be easily adapted as such:

Fresh asparagus tossed with a bit of olive oil can go directly on the grill racks. Just keep an eye on it, turning the spears with a pair of tongs every couple of minutes until they're done. Slabs of zucchini (sliced lengthwise) and eggplant can be grilled this way as well, just brush them with oil and season with salt and pepper or whatever spice mixture you like. I know they've become kind of a vegan barbecue cliche, but portabella mushroom caps are also excellent brushed with oil, seasoned, and grilled over direct heat like this.

Lettuce is amazing on the grill. No, I'm not kidding. Get some heads (or hearts) of Romaine, cut them in half lengthwise, drizzle with a bit of olive oil, sprinkle on some salt and pepper, and stick them right on the grill racks for just a minute or two. You can serve them as-is or chop them up and drizzle with vinaigrette dressing for a warm salad. Delicious.

I do a mixed veggie grill (pictured above) that is awesome -- mushrooms, onions, yellow squash, zucchini, bell peppers, eggplant, okra -- pretty much any tender spring/summer veggie (try baby artichokes with the choke scooped out), cut in slices/chunks of more or less the same size, drizzled with olive oil and tossed into a perforated grill pan (you also could cover the racks with foil, poke a few holes in it, and cook them right on that)(or if you're feeling fiddly, thread everything onto skewers). Serve these on a pile of herbed quinoa and you've got yourself a meal.

Corn on the cob is awesome on the grill. I know some people peel back the husks, remove the silk, then put the husks back over the corn and grill it that way but I can't be bothered. I just remove the husks and silk altogether and wrap the ears in foil. Either way, so good.

I cook a lot of veggies in foil packets over indirect heat on the grill (either on an upper rack or an unlit burner). Green cabbage is awesome this way -- cut it in wedges, drizzle with a bit of oil (I actually use butter, but feel free to substitute) and season with salt and pepper, seal it up in some heavy-duty aluminum foil and stick it over indirect heat for about half an hour. I also layer 1/4-inch slices of waxy potatoes and sweet onion in foil packets, drizzling and seasoning liberally with each alternating layer, sometimes tossing a few sprigs of fresh thyme or rosemary in there, and cook them the same way as the cabbage. Believe it or not, carrots are also fantastic cooked in foil packets on the grill. I slice them 1/3-inch thick on the diagonal or use baby carrots, steam in the microwave until crisp-tender, then grill in foil packets with minced garlic and herbs (again, I use a bit of butter here, but a drizzle of olive oil would work just fine).

Stone fruit is AWESOME on the grill, if you've never tried it. Cut peaches or nectarines in half, remove the pits, and grill cut side down. Some people sprinkle sugar on the cut sides before grilling but that has made an unholy mess whenever I've tried it, so I just grill 'em plain. Pineapple is also awesome on the grill, cut in rings or wedges. You can either eat the grilled fruit as-is, chop it up and make a kick-ass fruit salsa, or put a couple of scoops of coconut milk ice cream on top of the hot fruit.

In short, I'm pretty sure the only non-meats I HAVEN'T tried to grill are beans and grains. If I figure out a way to make those work, I'll let you know. I'm sure grilled slabs of tofu, seitan, nut/grain loaves and other vegan "meats" would be awesome, but we don't eat those so I can't help you there.

If you can't grill it directly on the racks then thread it onto skewers, plop it into a grill pan or cover the racks with foil. If you can't grill it any of those ways either, stick it in a foil packet over indirect heat. But whether vegan or omnivore, for crying out loud, get your ass out of the kitchen this summer! It's too hot to cook in there.